September 2, 2006

Well I thought i would update everyone on how Daniel is doing and whats happening. This month is going to be a busy one for Daniel. We go back to Primary Childrens for Clinic, which is where we see a variety of Doctors, its usually about 6 or 7, but luckily they get it in one day. Its just a very long day!!! But Daniel is the strong one for us, we will get to find out about whether or not they will have to do surgery on his feet, and we also have to have a few more MRI's and a bladder study, which is a CMG. Most of these test are repeats from what we did in Feb and March, they just are checking to see if anything has changed since his surgery in March. Were hoping things are either the same or have improved! So we are keeping our fingers crossed. We also found out that he still needs his helmet, so we go in this week to get a new one fitted, he outgrew the first one, but they think a few more months would be very beneficial. Also we still have the Physical and Occupational Therapist coming every week. Its amazing how much they have helped! Its been a rough year for Daniel, but he has really pulled through. Daniel may not have the physical strength, but he really makes up on it with he's personality! He is the most happy, fun loving, energentic baby, he's the little angel in our family!

On a side note I just want to thank everyone who has helped us and supported us these last nine months, I'm not sure how I've done it, I have spent many hours crying and praying, and I'm just so grateful for our family and friends. We are so lucky to have all of you part of our lives!
also as things go on this month i'll keep updating on how his appointments go. But thanks again for everyone's support.

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